tag:blogger.com,1999:blog-5698433825097075104.post1403016591523695308..comments2012-06-19T09:47:33.935-05:00Comments on Ben's Journey with Craniosynostosis: Helmet TimeMaggie Szafranskihttp://www.blogger.com/profile/00269510732413752333noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-5698433825097075104.post-7379532164530521982010-03-22T13:27:16.761-05:002010-03-22T13:27:16.761-05:00Hey Maggie! I am so glad that Ben is adjusting to ...Hey Maggie! I am so glad that Ben is adjusting to his new helmet! I will be thinking of you as make your first solo trip to Dallas. I am sure it will get easier each time. I just found out that someone I "know" through our adoption agency is adopting a little girl from Ethiopia with craniosynostosis. They don't know a lot yet since the technology in Ethiopia isn't great and probably won't know much until they get her to the States and have a doctor look at her. But would it be okay if I passed along your blog and email to her in case she wants to reach out to someone going through it?<br />Keeping your family in my thoughts!!!<br />Thanks, Emily BusterThe Bustershttps://www.blogger.com/profile/04997732379617645016noreply@blogger.comtag:blogger.com,1999:blog-5698433825097075104.post-25620360006328732132010-03-20T22:20:32.653-05:002010-03-20T22:20:32.653-05:00I am so happy to read your story here -- I was fol...I am so happy to read your story here -- I was following your decision-making progress on Cranio Kids (I'm CalinaLily), and I wish I could have been more communicative to help you through the hardest bits. The last 6 weeks have been personally very hard on me, dealing with some medical issues of my own, but I'm glad to have found you all the way "on the other side" and still happy with your decision to go the endo route for Ben's procedure. I'm also so pleased to hear that your first week of therapy is going well. That was the hardest part for us! (Especially sleeping. Not my daughter's forte, to say the least...) <br /><br />My Calina will be done with helmet therapy in another 2 weeks, and (naturally) we're so looking forward to that... but I can totally relate to being "glad" about having the helmet there as extra protection! She just started walking, and has banged her head no less than a dozen times in ways I've thanked goodness that bit of plastic was on her noggin! :) <br /><br />And as far as the neck-pinching, I found that the little bottom curl of her helmet ended up a useful tool... A way to hold on to her head/back of her neck without her noticing!<br /><br />As if we need more reasons to be proud of our kids, he will show you again and again that the helmet doesn't hold him back from doing all the things he was made to do, and as every milestone passes, you'll be so so happy to see that he's growing up just like he should be. I know we were. :-DMelhttps://www.blogger.com/profile/05352201238395429545noreply@blogger.com