The end of a chapter...

Hip hip hooray!!!! Ben is finished with helmet therapy!!!!

Ben and I went to Dallas today, along with my mom, for what we thought would be a helmet adjustment and scan. When we arrived Dwayne said Ben does not have to wear it anymore! I was so excited that I didn't ask too many questions. I probably should have been a bit more inquisitive about if he had talked to Dr. Genecov or how he came about his decision to discharge us, but I was too excited- I just wanted to get out of there. We might send him an email just to double-check that it is the right time for Ben to finish up, but I won't push the matter too much. I am so happy to have Ben's fluffy head back!

As we were checking out of Star Cranial, the receptionist said, "Have a good life!" I thought this was great- no more helmet appointments! Woo hoo! Dwayne said we could come back in six months, when we go see Dr. Genecov, to get a scan if we wanted to follow up, but it is not required.

The whole afternoon I was kissing Ben's head and playing with his hair. I just can't get enough of his head. It was amazing how many comments he got as we were walking around: "Look at that red hair!", "What beautiful hair" and the ever-present "Where did he get that red hair?" I didn't realize how few comments we got with his helmet until he had it off. He looks so different with it off- it might take me a couple days to get used to it. I am loving his fluffy red-head!

As my mom and I were talking today she said, "What a crazy six months you have had!" I couldn't agree more! It has been almost six months since we received Ben's diagnosis. At the time it seemed like it would take over our lives forever. It is hard to believe that this chapter in our lives is coming to an end. Ben has amazed us with his strength and positive attitude- he truly is the happiest baby I have ever seen. This journey has made us realize how much we take our health for granted. I appreciate all three of my children so much more because of what we have been through. What a journey it has been!

Ben's journeywith Craniosynostosis is winding down, but I will continue to update the blog whenever there are any major milestones or developments. Thank you all for your continued support and prayers. We are so grateful for all of our family and friends!

(The picture above was taken tonight to document this momentous day! There will be many more hlemetless pictures to follow. It also shows a more serious side of Ben. He was totally exhausted after
his big day!)


  1. I'm so happy for you! He is a beautiful baby.

  2. wow! what a time you have had of it. interesting that jp will get his cfa sucess report about the same time that ben got his success report. all of these challanges have pulled you together, maggie...your family is just stronger. I'm so proud of you both, you all...and I love you guys.

    julie skye

  3. The relief is exhilarating isn't it? Before you know it this will all be a distant (and faded) memory!

    God is Great.

    The Gustafson family